Empowering those with
sickle cell disease to thrive.
The Sickle Gene International Foundation (SGIF) aims to accelerate and expand efforts for early detection and treatment of sickle cell disease in Sub-Saharan Africa, to increase survival and improve quality of life.
Sickle Cell Disease Takes a Toll Worldwide
What We Do
Inspired and motivated by the accomplishments of internationally respected Professor Kwaku Ohene-Frempong, MD. Sickle Gene International Foundation aims to accelerate and expand detection & treatment early in life, provide services to prevent infections, strokes and pain, increase overall survival and improve quality of life.
The Sickle Gene International Foundation strives to save lives and eliminate the extreme pain and suffering that millions of people around the world with sickle cell disease experience by supporting high-quality screening, medical treatment, psychosocial support, and research for improved treatments and a cure.
Screening & Follow-up
- Universal newborn screening (NBS) for disease detection and follow-up care and counseling
- Transcranial doppler (TCD) screening to identify those at high risk for stroke and initiate therapies for stroke prevention
Research
- Fund high quality research for improved access to treatments.
- Fund high-quality research for accessible curative therapies.
Medical Treatment & Psychosocial Support
- Expert management of the complications of sickle cell disease which can affect multiple parts of the body, cause pain, disability, organ damage and decreased survival
- Sustainable access to high level disease modifying medications/treatments
- Compassionate, respectful and culturally competent care indicating an understanding of medical and psychosocial needs, incorporating shared decision-making
Sickle Cell Speaks: Understanding Sickle Cell
Sickle Cell Disease Association of America: Clinical Trial Finder worldwide
Global Sickle Cell Disease Network: Treatment Centers Map
United Nations: World Sickle Cell Day Resolution June 19th
Sickle Cell Disease Coalition: Global Resources
World Coalition on Sickle Cell Disease-United Against Sickle Cell Disease